RESOURCES/RECURSOS

Autism

Autism Society of America– is the nation’s leading grassroots autism organization. They work to increase public awareness about the day-to-day issues about people across the spectrum, advocate for appropriate services for individuals of every age, and provide the latest information regarding treatment, education, research, and advocacy.

Autism Speaks– is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.

Autism Science Foundation– mission is to support autism research by providing funding and other assistance to scientists and organizations conducting, facilitating, publicizing and disseminating autism research. The organization also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism.

Autism Center of Excellence– was designated as an Autism Center of Excellence (ACE) by the National Institutes of Health in 2007, our UC San Diego center’s mission is to discover an early behavioral and biological signature of infants at risk for autism as young as 12-months

UCLA Center for Autism Research and Treatment– involves understanding the origins of social, communicative, and language deficits demonstrated by individuals with autism. It also focuses on the design and testing of experimental treatment interventions

ADD/ADHD

Attention Deficit Disorder– is the world’s leading adult ADHD organization. We are an international non-profit – 501C – organization founded over twenty-five years ago to help adults with Attention Deficit/Hyperactivity Disorder (ADHD) lead better lives. Since its inception, ADDA has become the source for information and resources exclusively for and about adult ADHD. ADDA brings together scientific perspectives and the human experience to generate hope, awareness, empowerment and connections worldwide in the field of ADHD.

ADD Resources– help people with ADHD achieve their full potential through education, support and networking opportunities.

Asperger’s Syndrome

Asperger/Autism Network- works with individuals, families, and professionals to help people with Asperger Syndrome or similar autism spectrum profiles build meaningful, connected lives. We do this by providing information, education, community, support, and advocacy–all in an atmosphere of validation and respect.

Asperger Syndrome & High Functioning Autism Association- serves individuals on the autism spectrum, their families, and the professionals who work with them, providing crucial resources and support as they face challenges, build on their strengths and fulfill their potential.

Bipolar Disorder

American Psychiatric Association is an organization of psychiatrists working together to ensure humane care and effective treatment for all persons with mental illness, including substance use disorders. It is the voice and conscience of modern psychiatry. Its vision is a society that has available, accessible quality psychiatric diagnosis and treatment.

Cerebral Palsy

United Cerebral Palsy of Los Angeles, Ventura, and Santa Barbara Counties (UCPLA) mission is to advance the independence, productivity and full citizenship of individuals with cerebral palsy, Down syndrome, autism and other developmental and intellectual disabilities.

My Child at Cerebral Palsy has the belief that knowledge is power. The easier information is to obtain and understand, the more your child benefits. Information is the vital tool that equips us all with an ability to make clear, informed decisions on health, education, wellness, and more. It’s almost always true that the more information, the better the potential outcome.

UCLA/Orthapedic Hospital for Cerebral Palsy is dedicated to improving function in children and adults with cerebral palsy through a program of timely diagnosis, comprehensive assessment and individualized treatment.

Deafness/Hearing Loss

National Association of the Deaf is the nation’s premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America.

Hearing Loss Association of America is the nation’s leading organization representing people with hearing loss. According to the National Center for Health Statistics 48 million (20 percent) Americans have some degree of hearing loss. It is the third most prevalent chronic health condition in older adults, after arthritis and heart disease, making it an issue of national concern.

Down Syndrome

National Down Syndrome Society works every day to increase public awareness about Down syndrome and discover its underlying causes through research, education and advocacy.

Down Syndrome Association of Los Angeles is here to enhance the welfare of people with Down Syndrome and their families through the development and promotion of education, counseling, employment and recreational programs and to increase public awareness, understanding and acceptance of Down Syndrome.

Epilepsy

Citizens United for Research in Epilepsy is the leading nongovernmental agency fully committed to funding research in epilepsy. CURE’s mission is to cure epilepsy, transforming and saving millions of lives. We identify and fund cutting-edge research, challenging scientists worldwide to collaborate and innovate in pursuit of this goal.

The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences and will prevent, control and cure epilepsy though research, education, advocacy, and services. This site has general information on epilepsy as well as information on research, programs, and advocacy.

Fragile X Syndrome

National Fragile X Syndrome has the latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Finding a Cure for Fragile X is a nonprofit, tax-exempt organization committed to finding a cure for fragile X, FRAXA has funded more than $26 million in biomedical research, yielding discoveries that are changing the lives of families coping with fragile X.

Intellectual Disability

The Arc is for people with intellectual and developmental disabilities where they promote and protect the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Learning Disabilities

Learning Disabilities of America provides support to people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources. These services make LDA the leading resource for information on learning disabilities.

National Center for Learning Disabilities to improve the lives of the 1 in 5 children and adults nationwide with learning and attention issues—by empowering parents and young adults, transforming schools and advocating for equal rights and opportunities. We’re working to create a society in which every individual possesses the academic, social and emotional skills needed to succeed in school, at work and in life.

Mental Health

Mental Health Matters is a user-friendly directory for mental health professionals, consumer, and their families. Highly selective listings.

Mental Health Gov provides easy access to find information about mental health services and resources in your area.

Speech and Language Impairment

American Speech-Language-Hearing Association is the national professional, scientific, and credentialing association for 191,500 members and affiliates who are audiologists; speech-language pathologists; speech, language, and hearing scientists; audiology and speech-language pathology support personnel; and students.

Spinal Cord 

Christopher & Dana Reeve Foundation– The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.

Embracing your space: Resources for Spinal Cord Injury

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Civic

The U.S. Senate provides information on Senate activities, history, committees, schedules, legislation, links to the Web sites of individual senators and a virtual tour of the U.S. Capitol.

Voter Registration in California, you must be a US citizen, a resident of California, 18 years of age or older on Election Day, and not currently imprisoned or on parole for the conviction of a felony. If you have a developmental disability and need assistance registering to vote, please ask your Service Coordinator for help.

Thomas Legislative Info has direct access to bills (passed and pending), congressional record, and constitution.

California State Government links to many state agencies and departments.

Official California Legislature Information has Information on legislation, House members, committees and links to other government resources.

California State Department of Developmental Services is the agency through which the State of California provides services and supports to individuals with developmental disabilities.

California State Council on Developmental Disabilities is established by state and federal law as an independent state agency to ensure that people with developmental disabilities and their families receive the services and supports they need.

Legal Services and Advocacy

Disability Rights California advocates, educates, investigates and litigates to advance and protect the rights of Californians with disabilities. They assist with Regional Centers, employment, special education, mental health, benefits and managed care, discrimination, and voting. Each Regional Center has a Clients’ Rights Advocate that is provided by DRC and is there to help individuals and families when then need assistance.

Learning Rights is a legal services nonprofit that fights for a child’s right to education. Learning Rights assists low-income families by providing free legal counsel and advice, advocacy, direct representation, education, training and policy work.

Infants

March of Dimes improves the health of babies by preventing birth defects and infant mortality. The March of Dimes carries out this mission through programs of research, community services, education and advocacy.

Educational Resources

The Help Group provides innovative and comprehensive special education an therapeutic programs. The Help Group has been dedicated to serving young people with special needs related to autism, Asperger’s Disorder, learning disabilities, emotional development, mental retardation, and abuse and neglect.

Exceptional Minds Studio is a nonprofit vocational school and working studio that prepares young adults on the autism spectrum for careers in digital animation and visual effects.

Santa Monica College, Disability Resources offers guidance and counseling on admissions requirements and procedures, as well as a number of special programs to help students with their academic, vocational, and career planning goals. In addition, the Center offers services such as tutoring, specialized equipment, and test proctoring, among many other accommodations
for students who are eligible.

West Los Angeles College, Disabled Students Programs and Services help students who have special needs because of physical, communication, or learning challenges can visit the DSPS
program intake office, and speak to a program representative about program eligibility and services.

Federal Interagency Coordinating Council (FICC) provides a useful storehouse of information for parents of children with disabilities, focusing on the efforts of the Federal Interagency Coordinating Council (FICC). The council facilitates federal, state and local activities related to serving infants, toddlers, and preschoolers, from birth through age 5, who receive services under the Individuals with Disabilities Education Act (IDEA), as well as other federally funded programs such as health care, child care and social services.

Employment/Training

Getting Hired– Employment opportunities for Individuals with disabilities – Bridging the Gap Between Job Seekers with Disabilities & Employers Looking to Hire

UCLA Extension Education is a sequential program for students with intellectual and other developmental disabilities, offering a blend of educational, social, and vocational experiences, taught and supervised by experienced instructors sensitive to the individual needs of our students. On campus, Pathway students attend classes and participate with UCLA students in the many social, recreational, and cultural activities of a major university.

L.A. Speech & Language Therapy Center  is a workplace with a Social Skills Employment Readiness Program unique 10 month program focusing on the social skills needed to navigate effectively in the workplace.

Los Angeles Jewish Abilities Center is a community resource for Jewish adults with special needs and caregivers.

Help Services

211 L.A. County is a dedicated service that provides an easy-to-use, caring, professional source of guidance, advocacy, and 24 hours 7 days per week access to a comprehensive range of human services to the people of Los Angeles County.

Psych Central has Telephone, Hotlines and Help lines

LA County Helps! is a free and easy way to find out if your family can get help from many different health and human services programs.

Office of Disability Employment Policy has information about Social Security Disability insurance and Supplemental Security Income, disability benefits.. Etc.

Health

Achievable Foundation  provides a unique and vital support system for the health, well-being, mobility, and communication needs of persons with low income and developmental disabilities.

L.A. Care is an independent public agency created by the state of California to provide health coverage to low-income Los Angeles County residents.

New DDS SafetyNet Content: Practicing Preventive Health has brand new tips and tools to help you be prepared for your annual checkup.

Venice Family Clinic is one of the largest free clinics in the United States, the Venice Family Clinic serves as a beacon of hope and healing for low income families. Find out about services and events.

Healthy City improves the ability of low income, underserved children, adolescents, and their families to access services and advocate for critical resources in their neighborhoods and communities.

New York Times ‘Your Health Daily” is a health newsletter

Saint John’s Health Center provides information about Health & Wellness, Patient & Physician Information, Special Events, and Volunteer Opportunities.

Safety Net is a web site is dedicated to the dissemination of information on the prevention and mitigation of risk factors for persons with developmental disabilities. The site includes information from across the nation on current research and best practices and practical information directed towards improving consumers’ health and safety and insuring their protection from harm.

Los Angeles County Department of Health Services provides a wealth of health information including the availability of services and state of the art strategies for improving the health of all Angelenos.

Humanitarian Organizations

American Red Cross volunteers and staff work to deliver vital services and work to provide relief and support to those in crisis, to helping you be prepared to respond in emergencies. Here is the link to find your Local Chapter of the American Red Cross.

Nutrition

Nutrition.gov is a USDA-sponsored website that offers credible information to help you make healthful eating choices.

Eat Right-Academy of Nutrition and Dietetics is the world’s largest organization of food and nutrition professionals. The Academy is committed to improving health and advancing the profession of dietetics through research, education and advocacy.

American Society for Nutrition supports its members and fulfills its mission by fostering and enhancing research in animal and human nutrition; providing opportunities for sharing, disseminating, and archiving peer-reviewed nutrition research results); fostering quality education and training in nutrition; upholding standards for ethical behavior in research, the protection of human subjects, and the care and treatment of research animals; providing opportunities for fellowship and support among nutritionists; and bringing scientific knowledge to bear on nutrition issues through communication and influence in the public domain.

Recreational Organizations

Special Needs Network (SNN) raises public awareness of developmental disabilities and to impact public policy, while providing education and resources to families, children and adults. SNN serves as a link between under-served communities and mainstream developmental disability organizations and governmental institutions, which often fail to address issues specific to these communities. SNN firmly believes that dignity, hope and opportunity are the birthright of all children.

The Friendship Circle creates friendship in the lives of individuals with special needs and those facing isolation while providing an opportunity to become a contributing member of the community. Through our programming, Friendship Circle aims to promote an inclusive community that values all individuals regardless of the challenges they face.

Kids Like Me (The Help Group) offers a number of after-school programs for children and teens with autism spectrum disorder and other special needs in the Los Angeles area.

The Miracle Project groundbreaking methodology to provide individuals with autism and other disabilities the tools to build communication, social skills, community, and greater self-esteem through inclusive theater and expressive arts programs

Leaps n Boundz provides adaptive sports, recreation and social programming for individuals with special needs. We teach in therapeutic and fun environments that promote strength and growth in all aspects of life.

Transition to Adult Life

Department of Education California provides resources and guidelines for educators, parents and agencies that will assist transition age youth identify and move toward their post secondary goals in independent living.

The Edge The EDge newsletter—a publication of the California Department of Education, Special Education Division—informs and supports California’s parents, policymakers, educators, and other service providers on special education topics, focusing on research-based practices, legislation, technical support, and current resources.

UC Davis Mind Institute and Center for Excellence in Developmental Disabilities (CEDD) » resource page for Transition to Adulthood.

CA Transition Alliance supports youth-serving professionals who assist youth and families as they transition from secondary education to adult life.

Transportation

Access facilitates the provision of complementary ADA para-transit services to certain persons with disabilities as required by 42 U.S.C. §12143 under the name “Access Para-transit.”

Complete Access is an organization that adapts vans and equipment for the disabled and has adapted rental equipment available. They also provide remodeling services to make homes more accessible. Complete Access accepts many private insurances and are awaiting Medicare approval.

City Ride is a transportation assistance program for individuals age 65 or older and qualified disabled persons in the City of Los Angeles and select areas of Los Angeles County. The program offers Cityride participants reduced costs for the purchase of City of Los Angeles permitted taxi rides and Cityride Dial-A-Ride services.

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Useful Links

TASK (Team of Advocates for Special Needs): offers workshops on a monthly basis for Asisstive Technology/ofrecen talleres cada mes para technologia asistiva

Airport Marina Counseling Service is a comprehensive therapeutic services to individuals, children and families, couples and older adults, many of whom would otherwise have little access to counseling. Open seven days a week, Airport Marina Counseling Service provides an array of successful programs, both at the Clinic and off-site, to meet the needs of people of all ages.